Your Health

Companion

Your voice in cancer research

Watch introductory video

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Developed with Lung Cancer Nursing UK and Mesothelioma UK

Your Health Companion for patients living with

Lung Cancers

Developed with Lung Cancer Nursing UK and working with Roy Castle Lung Cancer Foundation, EGFR+ and ALK+.

Your Health Companion for patients living with

Mesothelioma

Developed with Mesothelioma UK and working with patient support groups: LASAG, HASAG, SWASAG, EEPSG, and MESSY.

Your Health Companion for healthcare professionals

HC Professionals

Helping to deliver better clinical decision-making and patient care.

When living with cancer, knowing what impact the disease is having on your life is essential if you are to receive the best care possible.

Your Health Companion works like a private diary. It enables you to keep an accurate record in one place, across time - so you are able to monitor changes in your health and wellbeing; empowered to be more in control of your care and, together with health care professionals, better manage your illness and symptoms.

At the same time, by collecting valuable Patient Reported Outcome Measures (PROMs) the app helps put 'patient voice' data central in helping to inform the way cancer care, drugs and treatments are evaluated and improved to help drive up standards and improve treatment. 

Designed to be simple & easy to use.

Simple ‘To Do’ lists and reminders.

  • Less than 10- mins per month to complete.

  • Reliable data that shows how the disease is impacting your life.

  • Better decision-making and co-ownership of care.

  • Patient ‘voice’ data collected nationally informs research to improve cancer services and medicines.

  • Support team are on-hand to help you.

  • Confidential and secure in-line with Public Health England, NHS Digital and cyber security guidelines.

For both Pleural & Peritoneal Mesothelioma

Patient-Reported Outcome Measures (PROMs)

Your Health Companion will ask you to complete monthly PROM questionnaires. These surveys help you and your healthcare team understand how you feel about your health goals, the care you receive, your well-being and your progress.

Most of these questionnaires take little more than a minute to complete, and there are only four of them to complete each month. Less than 10 minutes in total.

…add your voice to the sound of the crowd

What are PROMs

Patient-Reported Outcome Measures, or PROMs, are standardised, validated surveys. They are used to study how you feel about your health status in areas such as:  pain; mobility; ability to perform daily tasks or specific activities.

 We collect these PROMS monthly (or weekly if you prefer) during your treatment and while you are recovering or are trying to get back to your life. They are especially useful for: monitoring your progress; helping you communicate with your healthcare team; helping care services improve the quality care for patients like you.

There are two basic types:

  •  General health PROMs can be used to survey patients with any condition. They usually focus on general well-being, mental health and/or quality of life.

  • Condition-specific PROMs usually concentrate on the symptoms of a particular disease. They may ask questions about your mobility, function or pain levels in certain areas of your body.

Working Together

Your Health Companion has been developed in partnership with healthcare professionals, patients and advocacy partners and is being rolled out across the NHS nationally.

Testimonials

Testimonials

“This proactive approach helps clinicians spot deviations in patient health and wellbeing, so any changes are flagged, early interventions made and prompts important conversations.”

Phoebe Osborne, East of England Asbestos Patient Support Group

“the process is easy and time efficient and enables patients to have a voice which as nurses is at the heart of what we do!!”

Rachel Thomas

Senior Oncology Nurse, Hugh James

“It (the Health Companion) went down extremely well with our audience. Such a simple idea, and such a valuable tool to be used by both patients and hospitals to improve patient care.”

Steve Squibb, Operations Manager,

HASAG - asbestos disease support

“I wish my husband had access to the app, I know it would have changed the conversation we had with the healthcare team to allow his voice to be heard.”

Bonnie Thompson

Wife of Mesothelioma patient

“Our nurses have been looking for something that gives them real insight into the impact of the disease on the patient. This information is vital, as it will help nurses provide targeted support and assistance"

Liz Darlison MBE EN RN BSc MSc

Head of Services Mesothelioma UK

“I think some people tend to get frightened about giving out information about their illness and how they feel day to day, when in actual fact, it would help them and the medical team treating them have more knowledge and a clearer picture about their treatment, medicine and well-being on a regular basis and cut out repeated questions."

Patient ambassador

“It’s the first time in my life that I’ve used an app you can’t make a mistake on!”

Maggie Allen

Patient ambassador

Make your experience count. We urgently need your feedback.

Take part in our comprehensive national survey to capture real-world experience of what it is like to be diagnosed, be living with, treated and cared for if you have mesothelioma in the UK.

 Completing the survey, you will be asked about

  1. Patient experience of care and treatment 

  2. Quality of life assessment 

  3. Individual clinical management of mesothelioma 

 Results from our 2018 survey helped us develop our priorities as a charity as well as make recommendations to the wider mesothelioma community and health care providers.

Please tell us how you feel via Your Health Companion.

A HUGE thank you to those of you already using Your Health Companion.  If you’re already using it, you will probably have completed your experience audit by now.  Thank you  – your feedback is extremely helpful.

 BUT we need ALL our members to complete the survey via Your Health Companion.

 For those of you who have not done a survey, please register by clicking the button here and follow the simple instructions entering your email and NHS number, which only takes 2 minutes.  The survey takes about 10 to 15 minutes in total, but you don’t have to do it all at the same time.

 The MORE Report for 2018 was published in 2020 and you can read it here.  

 Your Health Companion can do more than just capture your experience. If you want – you can continue to use it to help us transform research by spending no more than 8 minutes a month recording how you feel and your ongoing quality of life.  See some of the pictures we’re starting to collect showing for example how the Mesothelioma community as a whole experience their ‘Symptoms’.

Click here to register and complete the survey. Come back at any-time if you didn’t complete at first sitting.